The Burden Of Autoimmune Diseases – Is There A Cure?

Although the topic is vast and complex, millions of people are sick or afflicted due to autoimmune disorders. Physiologically the body mistakenly creates proteins that attack its own cells. This creates a whole list of disorders to include lupus, MS, psoriasis, arthritis, iritis, Type 1 diabetes, and many others.

There might be breakthrough technologies that help with autoimmune diseases, but I will just share my own experiences. In the early nineties I developed a severe case of iritis. It is an autoimmune disorder of the iris leading to inflammation in the anterior chamber of the eye, along with a significant rise in intraocular pressure.

To begin with I went to an eye specialist at the VGH eye care centre. The medical treatment is basically steroids, pain killers, and eye drops to dilate the pupil, to prevent scarring of the lens. During acute flare ups, I was told to put steroid eye drops in my eye every thirty minutes. My eye was so inflamed, the doctor asked if he could use the images for publication, and to teach medical students at UBC.

The steroids offered some relief, but in my opinion, not enough to warrant pouring such large amounts of steroids into my system. So I backed away from the conventional treatment, and started reading forums and testimonials from others who have it, and how they have managed it.

In hindsight, I am very glad I quit the opiates and steroids long ago, as the conventional medical treatment. People who use the steroid drops eventually develop white cataracts, and require surgery for that. Plus the steroids poured into the eye, do go systemic, and you get all the risks and side effects associated with steroids.

One of the most interesting cases I followed, was of an ophthalmologist in Europe who treated those with iritis, and had developed iritis himself. He created a blog and shared his journey for a hopeful cure. He had a great deal of confidence in his profession. He also knew the locations with the best known experts, eye surgeons, and most sophisticated equipment. The blog was filled with detailed diagrams, and was updated on a regular basis. It was very educational, as far as the anatomy and physiology of the eye is concerned. He showed how the inflammatory process develops, and creates a cloudy high pressure fluid in the anterior chamber of the eye.

In the doctor’s case, unfortunately it got to the point where the intraocular pressure could not be relieved or controlled. He went to a highly specialized clinic in Switzerland and had a tiny stent put into his eye. The idea was that the stent would serve to drain away some of the fluid build up, and reduce the pressure, which would also reduce the pain. Once again, he was filled with optimism and confidence in the treatment program. He published detailed drawings to show the placement of the stent, and explained how it would work.

The following blog posts after the procedure started to take on a more depressing, less optimistic tone. The fluid in his eye could not be regulated properly with a stent, and his eye collapsed inward. He had to wear a protective cap over his eye at all times. Even once the stent was removed, there was a myriad of problems. He soon stopped writing and sharing his misfortune.

There are cases where people have had their eyes removed. I can see why. An acute flare up feels like your eye is going to explode, while simultaneously it feels like there is a dagger right through the centre of your eye. I liken it to being stung in the eye by a scorpion.

On the other end of the healing spectrum, I read of cases where people shared holistic methods of dealing with it. Some people tailored their diets, stopped gluten, stopped sugar, stopped alcohol, and found those remedies helped reduce flare ups. In hindsight, I am glad I followed a more holistic route and for several years managed to keep the worst of the worst flare ups at bay. But recently had a bout with it that was one of the worst ever. Stress is the culprit, I am almost positive.

This latest severe flare up was one where I had no Pred-forte, or other steroids, or pain killers like I had used in the past. The pain was so severe, it was like breathing through labour pains. If I didn’t already know the only treatment was steroids and opiates, I might have been tempted to go to ER, or see a doctor. But, I lived through it and am slowly recovering.

During the acute phase, my eyes watered non-stop. I went through six boxes of kleenex in three days. My whole face was chapped. The previous really acute episodes were back in 2009, when the familial punishment over my rejection of the high school teacher really started to intensify. There is definitely a dichotomy that develops within, and in a way it is not surprising such an affliction is turned inward.

From my own perspective, the cessation of alcohol, food additives, and finding ways to reduce or manage stress are the key factors that have helped manage it. There is a systemic element because you can feel the drain, fatigue, allergy symptoms, and other generalized symptoms. It does seem to be tied to, or triggered by allergies of some sort. It may also be linked to past trauma, as many things are, one way or another.

Even though I have had some wicked flare ups, I have not lost my vision, and have not required surgery for white cataracts. It takes weeks to gradually regain the vision in the affected eye after a flare up. During the most recent flare up, I used small doses of ASA or NSAID (non steroid anti-inflammatory) and then added grated raw ginger, ginger tea, all whole foods, rest, and meditation. The ASA was used sparingly, two regular strength tabs at night and sometimes two during the day.

Looking back, the most comforting and therapeutic measures came from warm baths, warm compresses, and essential oils. The essential oils were inhaled, just by rubbing them on the palms and then cupping your hands together and inhaling, with care not to get it too close to the eyes. Marjoram, Thyme, Eucalyptus, Lavender, Oregano are some examples of essential oils with anti inflammatory properties. They can also be put into a small amount of carrier oil and massaged into the scalp, and areas where there are lymph nodes.

Lymph nodes are located throughout the body. Apparently we have five to six hundred of them to help our immune systems cope with contaminants and infections. The areas with the most lymph nodes are underarms, neck, chest, and abdomen. To place a few drops of essential oil in some virgin coconut oil, and then massage it into the skin near the lymph nodes, might be dismissed by some, but it certainly doesn’t hurt.

Of course if a person has an intolerance, or develops a rash due to any substance, they should not use it. Nor should anything be used excessively. One of the primary reasons I do not take any oral supplements, is because I believe a good diet gives us all the nutrients we need. If we add supplements, in particular things like fat soluble vitamins – it can create havoc within our systems.

Supplements have been known to cause everything from bleeding disorders, to kidney failure, to liver disease. Just because something is natural, does not mean it is perfectly safe, especially in large doses. Before anything is taken internally it is wise to research it carefully. I have not done much research on which essential oils can be taken internally, other than oregano oil. I know some of them are not to be ingested and can cause harm. It does stand to reason that anything you can use in food, should be able to ingest in small quantities. Essential oils are the concentrated derivatives of the plant.

Therefore cinnamon, cloves, oregano oil, marjoram, and thyme would seem to be the ones to consider, but only in small doses. Peppermint should be okay too. Again, to avoid any damage to mucous membranes, it is probably best to out them in a carrier oil. Over time, I plan to do more research on the various essential oils, because they do seem to have much to offer. I have not had any allergies to any of the essential oils. In fact, they seem to help allergies a fair bit.

Nothing is going to make us live forever, and nothing is going to stop the process of aging. It is understandable for people to seek methods they believe will alleviate their own conditions or symptoms. I don’t pass judgement on those who do use supplements. Nor do I discount the value of conventional medical treatments for some conditions. If they lead to healing, recovery, or feeling better, who can complain? It’s just a word of caution – and I am only giving some small anecdotal examples, so take all things with a grain of salt.

I do take oregano oil internally for allergies and infections, but try not to use it too often. I have not tried taking Thyme or Marjoram internally, but may try a drop or two, for inflammation, once I find some that is 100% pure without additives, dyes, perfumes etc. You cannot buy the cheap oils used in aromatherapy packages for use on the skin, and especially not to be taken internally. The pure forms have to be sought out through a reputable herbal dispensary. For the most part I order from Gaia Gardens on West Broadway in Vancouver.

In addition to leaning toward the essential oils as a therapeutic measure, I think we have overlooked the value of water for healing. Hydrotherapy is an another ancient practice that is readily available and non-toxic. When we are unwell, if we drink more water, it makes it easier for the immune system to do its job. Immersing ourselves in water is comforting, and therefore therapeutic. Almost all medical treatment is geared toward treating and minimizing symptoms. So give credit where credit is due, when it comes to essential oils and hydrotherapy for relieving symptoms and stressors on the body. I suppose that’s why people buy hot tubs and go to spas.

Is there a cure for autoimmune disorder? As far as I know, there is not. It is a chronic condition that has to be managed. I have managed it though many stressful periods during the past ten or twelve years. Unfortunately, we cannot always control external contributing factors. Perhaps one of the keys to understanding the curse of autoimmune disorders, is to find ways to protect ourselves from external attacks, lest they become internalized and give us a double whammy.

However, when you consider the myriad of other illnesses or hardships, such as cancer, stroke, ALS, MS, and so on, any condition that allows us to get back on our feet, and overcome it without severe disability, surgery, or being incapacitated for long periods – is not really something to complain about. Just being pain free and able to function is something to have gratitude for.